TIME FOR ACTION, is the name of a campaign which is seeking to publicise more widely the ignorance, injustice and neglect faced by people with M.E. in order to encourage the government to put this right. The idea is to reach as many people as possible and encourage
them to back the campaign simply by registering their support online.
I was a forty-one year old busy housewife, with two girls under 10, a career in teaching and an active interest in the arts locally when, after a mild throat infection, I found myself constantly shaking, aching and sweating – as if I’d run a marathon – without sufficient energy to brush the tangles out of my daughters’ hair; even conversations became difficult. Mental fog, noise intolerance, digestive problems – there’s a very long list of symptoms but worst of
all was the lonely knowledge that the exact cause was unknown, recognition of its existence patchy, and no agreed treatment available.
That was nearly fifteen years ago. Today my younger daughter has no recollection of me ever going to work and I find it shocking to realise that more than half of my married life has been dominated by this illness. But I now consider myself lucky to be generally 50% well and able to do so much more these days, as long as I keep to a strict diet, get extra sleep every afternoon, restrict myself to outings of no longer than about two hours, always with rest days, before and after such activities. And here’s the proof: I am participating in this group, the first leisure activity I’ve been able to enjoy since becoming ill, and I can’t tell you how much that means!
So, if you could spare a couple of minutes to follow this link to read more. If you register your support, you would be contributing to a campaign which could make a huge difference to the 250,000 people who, like me, live with ME.
Thanks for reading,
Carolyn